Hello all! I have been wanting to type this blog up for a few months, and finally have the opportunity to. It's all about organization, and let me tell you, I am excited about it!
When the babies were initially getting ready to come home from the hospital, I was a little bit anxious about how my household would work, how equipment and supplies would best be organized, how paperwork would stay tidy, and how we could arrange everything in our house so that we still maintained SOME privacy. I scoured the Internet for other moms who had special needs kiddos, and how they organized THEIR household. Honestly, it is an overwhelming feeling trying to prepare for and predict the needs of medically complex babies. Let me be the first to say, our method is not perfect, but it is functional, and for the most part, efficient.
The first and most important thing that I can share with anyone who is trying to prepare for the arrival of a special baby is to talk with those who have experience, like the nurses in the NICU, they were BRIMMING with great ideas, and if you have met other parents of special needs kids, ask them if they would mind sharing their methods with you. I met a momma who was very gracious in letting me come over and see how she had her household set up, where she organized all the supplies and equipment, and what items she considered "must-haves." It was enlightening, and just plain useful information. I also talked to our home health nurses about what they had encountered in the past that worked really well, and I ran almost all my ideas by them before implementing them. Some ideas they loved, some ideas they immediately vetoed! (I still ask my nurses what they think, and whether or not something is functioning as it should, and I listen to their advice and input. So let's just get started, shall we?
The most important piece of equipment currently is the trach/spare trachs. Every responsible adult in the house HAS to know the EXACT location of the spare trach AT ALL TIMES. (I promise I'm not yelling - I'm just trying to stress the importance of this.) I keep the boy's trachs in a travel toiletry bag with a hook: