I know this is a little late, but HAPPY NEW YEAR!!! I certainly hope that everyone had the most excellent holiday season, and were revived with new ideas and enthusiasm for the coming year. Dave and I are looking forward to this coming year, as we are hoping and praying that our family will eventually be united!
There are many changes coming our way whether we are ready for them or not, and that's ok. Life must go on, and so do we! I heard somewhere once during my college days that 'Time does not change; people do.' And that, my dear friends, is the truth. Our family has experienced so many changes and overcome obstacles this past year that I am amazed how well we still function! Ha! But God continues to give us the grace to handle the things that come our way, despite the fact that we are merely humans, and we have moments of utter despair, frustration, and self-pity. God gives us what we need, when we need it, and I am content. I have learned to appreciate the things that really, really matter in this life, and to shrug my shoulders at the things that don't, and believe you me, I am still learning! One of these days, Dave and I will be the people that we are supposed to be, and when that time comes, we will be called to our eternal home. And that is our calling. In fact, that is everyone's calling, the difference is that YOUR path looks completely different than ours! So, to a new year, to new paths, to new hope!!
The babies are both recovering from infections that overtook them this holiday season. Owen's infection hit him first, and was basically the same yucky bug that got him last time. It had to do with bacteria growing on his tracheostomy tubing. He is feeling much better now, and plays like there is no tomorrow! He is living without regrets! (except, of course, when he pulls out his tubes. silly boy.)
Emmett's infection was septic, meaning it infected multiple parts of his body. I've also heard the term 'global' when describing the extent of the infection. At first, the doctor thought it was fungal meningitis, and a lumbar puncture was performed to identify the flavor of bug, but Emmett did not tolerate the puncture well at all. I, for one, don't blame him! Despite the fact that they were unable to identify the culprit, they hit the infection with appropriate antibiotics to knock it out completely. Emmett is feeling much, much better, and both boys will flash a gummy grin to the casual passer-by (i.e. the nurses who come to visit). They are both back to being their normal fun-loving, magnanimous selves.
The short term plans, from what I have gathered, are that Emmett will receive a jejunostomy tube (a feeding tube that will be placed in the jejunum or the middle part of the intestine) once he has recovered fully from the infection. If all goes as planned, it will be no sooner than 2-3 weeks from now.
Owen does not have j-tube plans as of yet because he is tolerating feedings currently, so why finagle a system that works, right? His current plan of care is to increase the amount of feedings he receives up to the point of no longer needing TPN (IV-feedings).
As with the majority of plans with these sweet boys, plans may change 10 times before anything happens, but really, its best to be flexible. With this being said, the 3-4 month mark of getting the boys home is probably moving in time with us. Which means that even though it has been about a month since this fluid estimation was given, it is still more than likely 3-4 months away. And it may be that in 3 months, it will still be 3-4 months away. Good things are ALWAYS worth the wait. :)
The tough side of this, though, is that it makes planning for the future needs of our family pretty much impossible. Being a 'planner,' I am struggling with sitting on my hands and waiting. I keep repeating to myself God's timing is perfect. God's timing is perfect. God's timing is perfect. And it makes the inbetween unknowns somewhat easier to manage.