Owen and Dave stayed overnight at the hospital. By Tuesday, Owen was on oxygen. Preliminary tests confirmed that he had rhinovirus (which presents as a common cold), and fortunately, a very mild version of it. He was stable enough to come home - we have been managing this round of infection from home. By Wednesday afternoon, Liam and Emmett both came down with the same infection, and while Liam and Ethan are both on the mend, the babies are taking their time to improve; however, they are both in good spirits, and they are both nearly off oxygen. I'm hoping in a few more days, they will be back on track.
This past week, Emmett had an appointment at the Scottish Rite Hospital to assess his scoliosis. With this appointment came both good(ish) news and bad news. Apparently, Emmett's scoliosis looks worse on the x-ray than it does clinically, which is good. It may buy us a little bit of time before some type of intervention has to be done. The bad news is that the early, less invasive options of treatment are NOT options because of his abdominal involvement - we HAVE to have access to his feeding tube ports. We are unsure what this is going to mean in the long run for scoliosis planning and management, but in the meantime, Emmett has to have an MRI (after he kicks the respiratory infection) of his entire spine, and he will have to go under anesthesia.
Owen's scoliosis appointment showed NO INDICATIONS OF SCOLIOSIS, however, Owen is not completely in the clear. At the cardiologist, he still showed a mild-moderate septal defect. Emmett's heart is perfect. We still have many years of medical appointments and check-ups ahead of us. It's part of the parcel. I happily accept the whole package.
If you missed the segment on The Meredith Vieira Show that featured the babies, don't despair! There are a few clips on you tube. You can either search for "The Meredith Vieira Show" channel, and then type in 'conjoined twins' or 'Ezell,' or you can click HERE for the first segment, and HERE for the second segment where the babies make and appearance. We had an altogether great experience meeting Meredith and her VERY hard working crew. They were all such genuine, kind, open-hearted people. They all took us under their wings, and encouraged us, listened to us, played with the two older boys, and they helped us make memories that we will cherish forever. Here are a few pictures from our trip:
I could go on and on with pictures from our trip, but just know this - we crammed as much of the city into our 1.5 days there that we could - cab rides, rush-hour subway rides, corner hot dogs, famous Ray's pizza, Central Park, Statue of Liberty, Grand Central Station, Times Square, and the wonderful people and experience of "The Meredith Vieira Show."
During my very brief time in New York City, I couldn't help but notice the immensity of the city - walking down the sidewalks, riding on the subways, strolling through the park all gave me one lasting impression of enormous insignificance. I felt like such a small person in such a huge place. In all the awe and wonder of this incredible city, God gave me a very humble perspective, and my soul continues to be grateful for His presence with my family no matter where we go.
The babies are learning to by my little helpers around the house - they like to help me sort and fold clean socks:
That's all for now! I pray that God blesses you all this month!
3 good things:
1. Being given the opportunity to meet such kind and genuine people in a foreign city.
2. The helpful and ever-patient guidance of so many doctors in helping us continue to learn how to best manage our boys.
3. Having a husband who is willing to go to work every day to provide for our family. (I don't think he truly knows how much I appreciate him.)